Well...Monday’s platelet count was elevated which is reassuring...but sleep is definitely the most concerning side effect of prednisone. We are trying different remedies including an attempt to take the medication between 2-4 am. This isn’t usually a problem because we are both awake due to restless sleep. Another side effect is increased blood sugar levels which now require insulin injections three times each day before meals. Life has become a constant challenge...trying to increase his physical activity, decrease his blood sugar and include naps...for both of us!
Although the Hematologist diagnosed ITP...we are still uncertain about the cause and about the future treatment plan. John was contacted by two pharmaceutical companies which offer very expensive drug plans that are not covered by our extended health plan. More blood tests were done on Monday and we are waiting for the bone marrow biopsy to be scheduled.
Meanwhile we are entertaining ourselves with short walks and endless backgammon competitions!
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